We are pleased to announce the launch of MyVHL: Patient Natural History Study!

We are pleased to announce the launch of MyVHL: Patient Natural History Study! The MyVHL: Patient Natural History Study creates a platform for patients around the world to strengthen their voices and share information about VHL, a disease that causes tumors to form repeatedly in ten different organs throughout a patient’s life. VHL currently has no cure. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve VHL patient care. Join now and let your data tell your story! vhl.org/MyVHL