MyVHL: Patient Natural History Study

This is a registry for patients with VHL and related disorders. It's completely free for patients to participate. All information entered is private, confidential and secure. No identifying information will ever be shared.

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Rare Disease Research

This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?

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Participating in This Study

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.

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Join the Registry

Please create an account and provide consent to participate in the study.

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